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Como registrado, obtenemos información suya como nombre, fecha de nacimiento, sexo, número de seguro social, dirección, números de teléfono, direcciones de correo electrónico, etnia y ascendencia, información de contacto familiar e información bancaria (si decide donar a nuestra causa).
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DKMS does not provide any medical services; however, we recruit healthy volunteers as potential hematopoietic stem cell (HPC) donors, and we facilitate medical services for the donation process. The information we gather helps hospitals that treat patients with life threatening blood diseases make treatment decisions for their patients. Our marketing and field-based recruitment teams may store and use information about patients and families with whom they have relationships, for example in connection with follow-up stories regarding those patients. Such information will only be used in accordance with the terms of this Notice. DKMS considers those who register to be potential donors to be “registrants,” and those who begin any part of the donation process to be “donors.” As a registrant, we obtain information from you such as your name, date of birth, gender, social security number, address, telephone numbers, email address, ethnicity and ancestry, family contact information and banking information (if you decide to donate to our cause). DKMS stores this information, and may share such information amongst its affiliated entities, some of which may be located outside of the United States. As a donor, each time you visit a doctor, hospital, laboratory, or any other health care provider, a record of your visit is made. Typically, this record contains your name, age, gender, address, telephone number, symptoms, examination and test results, and, if needed, a diagnosis, treatment, and plan for future care. Additionally, we store basic information about transplant recipients that is needed to facilitate HPC donations. This information, often referred to as your health or medical record, serves as a:
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