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  Синдром на Гителман - И...  
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Европейско проучване за разпространението и риска от нарушенията от аутистичен спектър в съответствие с имигрантския статус
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European studies on prevalence and risk of autism spectrum disorders according to immigrant status
  Европейско проучване за...  
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Начало Ново на сайта Европейско проучване за разпространението и риска от нарушенията от аутистичен спектър в съответствие с имигрантския статус
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Home Latest news European studies on prevalence and risk of autism spectrum disorders according to immigrant status
  Уилямс Синдром Асоциаци...  
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Открива  постоянни и временни информационни центрове в страната и чужбина и други аналогични структури в съответствие с българското законодателство и законодателството на приемащата страна
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It opens permanent and temporary information centers in the country and abroad and other analogous structures in accordance with the Bulgarian legislation and the host country legislation
  Често задавани въпроси ...  
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Националната програма за Редки болести е изготвена в съответствие с европейската и национална здравни стратегии. Ключова роля за развитието на Европейската общност се пада на съчетанието на принципите за солидарност и равни възможности за здраве с иновациите и технологичния напредък.
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National Program for Rare Diseases has been prepared in accordance with European and National health strategies. The combination of the principles of solidarity and equal opportunities for health with innovations and technological progress plays key role in the development of the European Community.
  Подаване на заявления и...  
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Подаването на предложения за заболявания за включване в Списък на редките заболявания и искания за обозначение на експертен център за редки заболявания е текущо и по ред в съответствие с Наредба № 16.
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The submission of proposals for inclusion of diseases into the List of Rare Diseases and requests for designation of expert centre for rare diseases is ongoing and in accordance with the procedures under Ordinance № 16. The official forms in doc and pdf formats can be downloaded from here.
  Нови правила за внос на...  
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Европейският съюз реформира правилата за внос на активни вещества за лекарствени продукти за хуманна употреба. От 2 януари 2013 г. всички внесени активни вещества трябва да бъдат произведени в съответствие със стандарти за добри производствени практики, еквивалентни на тези в ЕС.
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The European Union has reformed the rules for importing active substances for medicinal products for human use. As of 2 January 2013, all imported active substances must have been manufactured in compliance with standards of good manufacturing practices (GMP) at least equivalent to the GMP of the EU. The manufacturing standards in the EU for active substances are those of the International Conference for Harmonisation – ICH Q7. As of 2 July 2013, this compliance must be confirmed in writing by the competent authority of the exporting country. More information is available on the DG SANCO’s website.
  Нови правила за внос на...  
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Европейският съюз реформира правилата за внос на активни вещества за лекарствени продукти за хуманна употреба. От 2 януари 2013 г. всички внесени активни вещества трябва да бъдат произведени в съответствие със стандарти за добри производствени практики, еквивалентни на тези в ЕС.
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The European Union has reformed the rules for importing active substances for medicinal products for human use. As of 2 January 2013, all imported active substances must have been manufactured in compliance with standards of good manufacturing practices (GMP) at least equivalent to the GMP of the EU. The manufacturing standards in the EU for active substances are those of the International Conference for Harmonisation – ICH Q7. As of 2 July 2013, this compliance must be confirmed in writing by the competent authority of the exporting country. More information is available on the DG SANCO’s website.
  Заседание на Експертнат...  
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В съответствие със своите правомощия за превенция, защита и контрол Комисията за защита от дискриминация ще отправи препоръки за законодателни промени до институциите, които да доведат до подобряване на ситуацията и навременно лечение на болните с редки болести.
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On 5 August 2009 an extended meeting of the expert group “Social Policy and Public Health” to the Commission for protection against discrimination was held. It was indicated that there is some progress regarding the establishment of a register of patients with rare diseases under the National programme for rare diseases. Overall, however, it is vitiated by the cumbersome procedures for the launching and conduct of tenders for the supply of medicines under the Law on Government Procurement. In accordance with its powers of prevention, protection and control the Commission for protection against discrimination will make recommendations for legislative changes to the institutions that will lead to improvement of the situation and timely treatment of patients with rare diseases.
  Европейско проучване за...  
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Списанието European Journal of Public Health публикува проучване относно нарушенията от аутистичния спектър в съответствие с имигрантския статус. Нарушенията от аутистичния спектър, са били смятани за редки, но сега достигат нива на разпространение от около 1% и повече.
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The journal European Journal of Public Health has published a study about autism spectrum disorders according to immigrant status. Autism spectrum disorders (ASDs), once considered to be rare, are now reaching prevalence estimates of 1% and higher. A comprehensive literature search was undertaken for original articles reporting on prevalence and risk for ASD in Europe among immigrants and ethnic minorities and data across studies were compared. Seventeen studies conducted in Europe concerning immigrants and ethnic minorities were found. After analysing the results of studies conducted in Europe, it is unclear if higher prevalence estimates of ASDs among immigrants in this region reflect true differences, especially considering many potential confounding factors, e.g. genetic, biological, environmental and cultural. The full-text study you can find here.